NZORD - the New Zealand Organisation for Rare Disorders Hello everyone, In this issue: 1 - Pre-implantation Genetic
Diagnosis. 2 - Pharmac consultations. 3 - Events calendar for 2004.
1 - Pre-implantation Genetic Diagnosis. With the Human Assisted Reproductive Technology Bill due to be passed soon, and
with the National Ethics Committee soon beginning public consultation on this procedure, public comment is increasing
about the ethics and impact of this dramatic new technology. We have prepared a commentary on the topic from a family
and support group perspective. http://www.nzord.org.nz/internal.asp?CategoryID=100009=100066 D=100129 Read more....
2 - Pharmac consultations.
You can keep up to date with changes that Pharmac proposes to make to the availability or subsidy of your medicine, by
registering to receive their email alerts of consultations. This is an easy way to be well informed about proposed
changes that may affect medicines of interest to your group, and improves your chances of influencing the final
decision. Go to http://www.pharmac.govt.nz/mailing_list.asp and add your name and email address, then check 'consultations', plus any other information you'd like to receive. NZORD
is happy to discuss the implications of any proposed changes for your group, and advise on how you might respond.
3 - Events calendar for 2004.
Over the past year we listed more than 50 support group events. Our list for 2004 will be posted during December. To be
included, send details of your event to exec.director@nzord.org.nz