NZMA adds its voice to Rare Disorders NZ’s (RDNZ) call for the development of a National Rare Disorder Framework in New
Zealand, supporting the over 300,000 New Zealanders living with a rare disorder.
In a letter presented to the Minister of Health on Monday, RDNZ, with the support of NZMA, is calling for a National
Rare Disorder Framework, the next step toward inclusive health policy and a healthcare system that is fair for people
with rare disorders
“Health equity is crucial to our healthcare system, and equitable healthcare for people with rare disorders is no
different” says NZMA Chair Dr Kate Baddock. “Those living with a rare disorder in New Zealand face inequitable access to
diagnosis, treatment, and care. There is significant opportunity to enact meaningful change in our health policy that
will benefit those living with a rare disorder and their whanau, and recognise them as a national health priority.”