An all-new approach for the early detection of rheumatic heart disease will be developed and tested as part of a suite
of new research to be carried out by some of New Zealand’s district health boards (DHBs).
With its brand new Health Sector Research Collaboration Grants, the Health Research Council of New Zealand (HRC) has
collaborated with five DHBs around the country to drive health sector-led research that directly responds to health
sector and community needs. The grants, designed to upskill and empower healthcare organisations to conduct more
research, are being piloted with DHBs with the aim of being extended to other health providers in the future.
“Health research is very often academic-led or pharma-led. This is all about asking DHBs to take the lead on health
delivery research that directly responds to health and equity priorities within their region,” says the Health Research
Council’s chief executive, Professor Sunny Collings.
“There is true transformative potential in having our health sector conduct more research: learning and getting better
at what they do and finding solutions to our big health challenges,” she says.
The HRC and the selected DHBs are finalising arrangements for a portfolio of research activities with a combined value
of up to $3.96 million. One of the projects to be carried out at Counties Manukau District Health Board will focus on
early detection of rheumatic heart disease – a serious condition that can follow on from acute rheumatic fever.
A team led by paediatric infectious diseases specialist, Dr Rachel Webb, will develop and test a new nurse-led approach
for offering echocardiograms (heart scans) to siblings of children recently diagnosed with acute rheumatic fever (ARF)
at Kidz First Children’s Hospital.
Despite evidence showing siblings of ARF patients have approximately three times the increased risk of rheumatic heart
disease (compared to children in families where no one else is affected), siblings are not currently offered a heart
scan or any additional health checks for rheumatic heart disease.
Dr Webb says workforce shortages are partly to blame, with not enough cardiac sonographers in many regions of New
Zealand, particularly in areas where high levels of socio-economic deprivation co-exist with extremely high rates of
cardiovascular disease. “In Counties Manukau, this has led to unacceptably long waiting lists for outpatient heart scans
and to a very overstretched cardiac sonographer workforce,” she says.
“Counties Manukau experiences the highest burden of acute rheumatic fever and chronic rheumatic heart disease of any
region in New Zealand, with almost all cases occurring among Māori and Pacific peoples. We all share an urgent
responsibility to address this inequitable and unacceptable situation,” she says.
Making matters worse, the voice of patients and whānau has not been taken into consideration in the development and
provision of health services for rheumatic fever and rheumatic heart disease, she says. “That means our current services
may not align with the values and needs of Māori whānau and Pacific aiga. Concerningly, for our large high-needs
population in Counties Manukau, there is also a notable lack of a culturally reflective workforce.”
Dr Webb’s team aims to improve access to scans by training Māori and Pacific nurses to perform focused echocardiograms
for rheumatic heart disease and by implementing a trial programme for siblings of ARF patients.
Māori and Pacific health researchers led by co-investigators Dr Anneka Anderson, Dr Rachel Brown and Dr Florina Chan Mow
will also facilitate interviews, hui and fono with whānau to understand their experiences of the process and their
preferences regarding a sibling echocardiography programme.
“The training of nurse sonographers for rheumatic heart disease is a first for New Zealand and may go some way towards
addressing health workforce shortages and improving rheumatic fever services in Counties Manukau,” says Dr Webb. She
anticipates the project overall will improve patient and whānau engagement with frontline services as well as improve
long-term outcomes for individuals by actively finding cases early.
“There is a good theoretical case for earlier detection of rheumatic heart disease. If a heart scan picks up rheumatic
heart valve damage in the early (mild) stages, that person could have long-term treatment with penicillin and their
health outcomes would typically be very good, with them leading a normal active life. Severe rheumatic heart disease, on
the other hand, can lead to open heart surgery with devastating impacts on long-term health and wellbeing,” she says.
Professor Sunny Collings says the HRC is committed to strengthening health sector-driven research and has taken
proactive steps to engage with DHBs and meet them where they are, in terms of readiness to undertake health delivery
research.
“We were thrilled with the strong positive response we received from DHBs and for their willingness to work with us to
pilot these completely new grants,” she says.
Below is the list of selected DHBs and a summary of the research they plan to undertake.Health Sector Research Collaboration Grant recipientsBay of Plenty DHB
Research Activation Grant
Dr Sarah Mitchell
He Pou Oranga: Developing a framework for integrating technology and health
$89,708
Research Career Development Awards
Leigh Haldene
Exploring the use of technology (LifeCurve App) to promote wellbeing among Māori
$109,600
Mariana Hudson
Developing skills and expertise in Kaupapa Māori research methodology
$83,000Canterbury/West Coast DHB
Research Activation Grant
Dr Cameron Lacey
Review of Māori consultation processes for research
$41,622
*A second research activation grant is in negotiation
Research Career Development Awards
Jane George
Rural early years: ‘What growing up well looks like for Coast kids’
$63,956
Dr Laura Hamill
Improving Care and Equity in acute medical decision making (ICare-Equal)
$67,324
Dr Gavin Harris
Developing computational pathology capability and expertise for breast cancer
$123,212
Emily Timothy
Conceptualising inpatient rehabilitation early intervention vocational services
$67,249
*A further research career development award is in negotiationCounties Manukau DHB
Research Project Grant
Dr Rachel Webb
Implementation of evidence-based, whānau-focused care for ARF/ RHD in Counties Manukau
$451,266
*Two more project grants are in negotiation
Research Activation Grant
Summer Hawke
Programme theory-based framework evaluating an equity-focused Smokefree innovation
$29,854
Dr Jennifer Parr
Working with Māori to build a Māori-centred model of care in a mainstream acute hospital in patient services
$30,000
Dr Adrian Trenholme
Implicit bias and Kidz First Hospital
$29,834
Research Career Development Award
Te Hao Apaapa-Timu
Development of a Māori research advisor for the advancement of Māori research
$142,960
Bobbie-Jo Pene
Understanding task and time: Evidencing fundamental care interactions
$133,674Waikato DHB
Research Project Grant
Professor Ross Lawrenson
The determinants of health for Māori mothers and adults with chronic diseases
$1,399,781
Research Activation Grant
Professor Ross Lawrenson
Māori communities in project governance - health research outcomes
$90,000About rheumatic fever:
Rheumatic fever can develop after a ‘strep throat’ – a throat infection caused by a Group A Streptococcus bacteria. In a
small number of people an untreated strep throat leads to rheumatic fever one to five weeks after a sore throat. This
can cause the heart, joints, brain and skin to become inflamed and swollen.
While the symptoms of rheumatic fever may disappear on their own, the inflammation can cause rheumatic heart disease,
where there is scarring of the heart valves. In some cases, this could lead to needing heart valve replacement surgery.
Rheumatic heart disease can cause premature death in adults.