First funded treatment for motor neurone disease
The first funded pharmaceutical treatment for Amyotrophic Lateral Sclerosis (ALS), the most common form of motor neurone
disease, will become available from 1 October 2013.
PHARMAC has approved funding for riluzole (Rilutek) to treat ALS, a progressive, and ultimately fatal, neurological
degeneration where patients lose control of their movements.
PHARMAC Medical Director Dr Peter Moodie says riluzole can help slow progression of the disease.
“Slowing progression is very important towards the end of a patient’s life,” says Dr Moodie. “Taking riluzole may delay
the need for people to have surgical procedures to help them stay alive, such as a tracheostomy when they become unable
to swallow.”
Dr Moodie says evidence shows riluzole can extend patients’ lives and improve their quality of life.
“Until now patients with ALS and their treating doctors have had limited funded treatment options available, and no
pharmaceuticals specifically for ALS,” says Dr Moodie. “So it’s pleasing to be able to offer a funded option that helps
fill a gap in the available treatments.”
PHARMAC estimates that nearly 100 people will receive the funded treatment within three years, at a cost of
approximately half a million dollars per year.
ENDS