INDEPENDENT NEWS

Terminally ill man seeks to trigger cancer care referendum

Published: Wed 19 Jun 2019 10:32 AM
Terminally ill man seeks to trigger referendum to reform cancer care
Tim Brown, Otago-Southland Reporter
A Southland father with terminal bowel cancer hopes to trigger a citizens-initiated referendum to reform cancer care in New Zealand.
Blair Vining wants to get 300,000 signatures to trigger a citizens-initiated referendum to reform cancer care in New Zealand. Photo: Facebook / Screenshot
Blair Vining was diagnosed with stage four cancer last October.
He has launched a petition calling for the creation of a national cancer agency with oversight of care throughout the country.
The 38-year-old father of two knows his campaign for cancer care reform will not save his life. But he hopes it can save others.
Mr Vining has lived a lot of life in the nine months since his diagnosis, but there is one thing he still wants to tick off his bucket list.
"The part that really got to me when I got diagnosed was the lack of prevention and misdiagnosis. It's not just my story, so many people are being misdiagnosed and they're not being diagnosed early enough. The lack of prevention in New Zealand is not good enough."
Most district health boards are falling short when it comes to cancer care and there is no accountability, Mr Vining said.
That was where a national agency with oversight of the whole country could be a game changer.
So far more than 60,000 people have signed the petition which closes next Friday, but Mr Vining needed 300,000 signatures to trigger a referendum.
Most of his bucket list items have been about building memories for his family, but this one is about building a legacy.
Mr Vining said his family was a huge motivation for the petition and his wife is the reason he is still here.
"When we got our letter [after diagnosis] saying I had six to eight weeks to wait [to see an oncologist] and I only had six weeks to live, that part was just like 'What the hell?'. It really threw a spanner in the works and that was the part that really opened our eyes and made me want to do something about it."
It made him realise how broken the system was.
His wife, Melissa, got him treatment through the private sector and now Mr Vining takes each day as it comes, hoping to live it to the fullest and to tick off the last bucket list item.
"If we can get this cancer care plan out there and up and running then I'll die a happy man and then I'll know everything's being done to look after my family and friends and the rest of the country."
In support of the petition his 12-year-old daughter, Lilly, penned a letter to the Prime Minister, Jacinda Ardern.
"I think it shouldn't matter where you live in New Zealand or if you are rich or poor, anyone with cancer should be able to receive the best possible care," her letter said.
And the petition also attracted the attention of Invercargill Mayor Sir Tim Shadbolt, who appeared "nude" in a humorous video showing his support and declaring Mr Vining a "national hero ... making a stand for the whole of New Zealand".
While Mr Vining was immensely proud of his daughter and pleased with the support of high-profile people like Sir Tim, he needed the support of everyday New Zealanders to get 300,000 signatures before it closes next Friday.
"Over 600,000 have viewed our social media videos but if 600,000 people could give 30 seconds out of their time we'd be twice over the mark already," he said.
"Thirty seconds out of their time and they might even be saving their own life."
Mr Vining's plan would sound familiar to the government.
In 2017, the Labour Party campaigned on the creation of a national cancer agency and $20 million to get it off the ground. But two years on and no agency exists.
Health Minister David Clark told RNZ via a statement he agreed "we can do better, particularly for Māori and Pacific people, which is why I've asked the Ministry of Health to work on a new cancer action plan".
"It has been clear to me for many years that we can and should do better for many patients who suffer from cancer," he said.
"The plan will improve national consistency of services, equity, and health outcomes for people with this disease through better collaboration between DHBs, their clinicians, and the wider cancer care sector.
"The Director General of Health has committed to delivering the interim cancer action plan to me by the end of this month."
Dr Clark said he would make decisions about implementation of the plan later this year.
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